Patient Advocacy Groups (PAGs) for patient support services

For more than a century, Curium has harnessed the power of nuclear medicine to improve patient care while proudly supporting patient advocacy communities around the world.

List of relevant patient advocacy groups for patient support

We believe meaningful innovation begins by listening. By working closely with patient advocacy organizations and societies around the world, we gain valuable insights into the lived experiences of patients, caregivers and healthcare professionals, helping us better understand the challenges they face.

These conversations help inform our understanding of patient needs while supporting awareness, education and access to trusted information across a range of disease areas.

The organisations listed below provide valuable support, education and resources for patients and caregivers. We hope this directory helps connect our community with trusted organisations and useful information.

Neuroendocrine Cancer Awareness Network (NCAN)

NET Cancer Awareness is a global initiative dedicated to raising awareness of neuroendocrine tumours (NETs), a rare and often misunderstood group of cancers that can develop throughout the body. The campaign aims to improve understanding, support earlier diagnosis, advance research, and give a stronger voice to patients, caregivers, and healthcare professionals affected by NETs worldwide.

NCAN

Neuroendocrine Cancer Foundation or Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS)

The Neuroendocrine Cancer Foundation (NCF) is a patient advocacy organisation dedicated to supporting individuals and families affected by neuroendocrine cancer through education, awareness, and community connection. Through expert-led resources, patient programmes, support networks, and advocacy initiatives, NCF helps empower patients and improve understanding of neuroendocrine tumours (NETs) worldwide.

NCF

International Neuroendocrine Cancer Alliance (INCA)

The International Neuroendocrine Cancer Alliance (INCA) is a global patient advocacy organisation dedicated to improving awareness, education, diagnosis, treatment, and support for people affected by neuroendocrine tumours (NETs). Through international collaboration with patient groups, healthcare professionals, and researchers, INCA works to strengthen the global NET community and help improve outcomes for patients and caregivers worldwide.

INCA

The Healing NET Foundation

The Healing NET Foundation is a patient-led organisation dedicated to supporting individuals and families affected by neuroendocrine tumours (NETs) through education, advocacy, and community connection. Founded by NET patients and caregivers, the organisation focuses on raising awareness, empowering patients with reliable information, and fostering hope and support throughout the NET journey.

The Healing NET Foundation

Cancer Advocacy Group of Louisiana (CAGLA)

Cancer Advocacy Group of Louisiana (CAGLA) is a patient advocacy organisation dedicated to supporting individuals and families affected by cancer across Louisiana through education, awareness, advocacy, and community outreach. The organisation works to improve access to resources, strengthen patient support networks, and help ensure that patients and caregivers feel informed, empowered, and connected throughout their cancer journey.

CAGLA

Neuroendocrine Tumor Research Foundation (NETRF)

The Neuroendocrine Tumor Research Foundation (NETRF) is a non-profit organisation dedicated to funding innovative research and advancing scientific understanding of neuroendocrine cancers. Through research grants, education, and patient resources, NETRF works to accelerate breakthroughs in diagnosis and treatment while improving outcomes for people affected by neuroendocrine tumours (NETs).

NETFR

Prostate Cancer Foundation 

Prostate Cancer Foundation (PCF) is the world’s leading philanthropic organization dedicated to funding prostate cancer research and improving outcomes for patients. Through research, education, and advocacy, PCF works to advance earlier detection, better treatments, and improved quality of life for those affected by prostate cancer.

PCF

Zero Prostate Cancer 

ZERO Prostate Cancer is a leading patient advocacy organisation dedicated to improving the lives of people affected by prostate cancer through education, support, awareness, and advocacy. By empowering patients and caregivers with resources, access to care, and community support, ZERO works to advance earlier detection and better outcomes for those impacted by the disease.

Zero Cancer

X Cancer 

xCures (formerly xCancer) is a healthcare technology organisation dedicated to helping patients and healthcare providers make more informed treatment decisions through better access to clinical data. By using AI-assisted platforms to organise medical records and generate actionable insights, xCures supports personalised care, patient empowerment, and improved outcomes across the cancer care journey.

xcancer

PRIMR

PRIMR is a patient education platform dedicated to helping people affected by cancer better understand their diagnosis, treatment options, and clinical trial opportunities. Through physician-led educational content, simple visual explanations, and accessible resources, PRIMR empowers patients and caregivers to make more informed decisions and engage confidently in their care journey.

Primr
Next page
Healthcare Professionals